Long QT Syndrome Type 2 Registry
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Dear PACES friends, please see details on a new PACES approved research study. The following is a summary of the study:
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Data on LQT 2 is limited in children and adolescents concerning presentation resulting in diagnosis, efficacy of ß-blocker therapy and additional antiarrhythmic agents like mexiletine, efficacy of left cardiac sympathetic denervation as well as the usefulness of ICD implantation in this particular group of patients. All these measures have been reported to be associated with a significant number of side effects and complications.
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Finally, LQTS 2 genotype in childhood and adolescence has not been studied in detail yet.
To improve knowledge on pediatric LQT 2 this retrospective register study has been set-up. Aim of this study is to improve diagnosis and treatment of pediatric LQT 2 patients by collecting data on initial symptoms, diagnostic tests including genetics, treatment, complications and clinical course from a large number of international pediatric EP centers.
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Interested investigators should contact Thomas Paul tpaul@gwdg.de
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The study details and protocol are available on the PACES Website.
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